Update September 6, 2025

News

Saturday

Saturday, we had sausage for breakfast and sat in the cold waiting for it to be warm enough to go to the playground. Then when we got there, it was too hot, so we spent a couple hours at the beach. We dug in the sand and waded (except IL6, who was chest-deep.

In the evening, we had pork chops. M13 & IL6 played on their phones, and I read. Aaron sat and watched the fire. Then we played flashlight tag again that night.

Sunday

Monday was a sleepy day as I was really struggling with my sleeping disorder. I had to sleep on and off despite my meds, and was miserably tired the rest of it.

I made Aaron some white chili for his lunches and some pork chops for M13 over the week. M13 played Minecraft with IL6 a couple of hours. Aaron was feeling sick, but did get the shopping done. I only got a little reading done.

Monday

Tuesday I had a hectic morning. Immediately after work, before driving home, I called a clinic to see if I could get in with a certain type of hard-to-get appointment. There’s no waitlist, and I’d been calling twice a week for about 6 weeks. They actually had an opening! Not a perfect time, since I’d have to work around another regular meeting at the same time, but I still counted that as a success.

As I was driving home, the nurse from the elementary school called me to say she had no milk for IL6. Shoot! I had forgotten. So I rushed to the store and bought some. But I didn’t have time to bring it, as I needed to pick up D15 for an appointment. I ran the milk home, and brought it immediately after the appointment – 20 minutes before it was supposed to be there.

Dad’s new chair was delivered, and the broken one was taken away. Everyone likes dad’s new chair.

I scheduled 4 new appointments and rescheduled 2 appointments, which was a long time on the phone. I got my brake light fixed and went to the library.

After dinner, Aaron and I watched an episode of Andor. Then we had to stop because dad had a 102.9F fever. He was also so weak; he slipped to the floor while trying to stand, and I had to drag him back on the bed by his armpits.

The on-call nurse came and suggested that it was a COPD flare-up, possibly causing a bit of pneumonia (for the fever). She prescribed an anti-biotic, and I told her to send it to a pharmacy that was open till midnight. But apparently they changed their hours, which I determined when I drove out there. They now run from 9am-6pm. The closest late-night pharmacy is now 45 minutes away.

Of course, I had to call in to work, as all this lasted too late into the evening.

Tuesday

I spent all of Wednesday day rushing around, due to dad being sick. I got to Walgreens after giving them two hours to fill the antibiotic, and they hadn’t filled it yet! (Antibiotics and pain meds are supposed to be rushed.) I had to wait another half hour. Then I needed to get his laundry done, including remaking both his and M13’s beds, because he stresses when it’s not done quickly. He is sick and can’t deal with the stress. Then the dishes, and he usually does them, because buildup really stresses him. I didn’t want to stress him. Then a few other things simply needed to be done.

After IL6 got home from school, we immediately left for McDonald’s and his appointment, which went well. By the time I got home, I was too exhausted to read.

Wednesday

I spent all of Wednesday day rushing around, due to dad being sick. I got to Walgreens after giving them two hours to fill the antibiotic, and they hadn’t filled it yet! (Antibiotics and pain meds are supposed to be rushed.) I had to wait another half hour. Then I needed to get his laundry done, including remaking both his and M13’s beds, because he stresses when it’s not done quickly. He is sick and can’t deal with the stress. Then the dishes, and he usually does them, because buildup really stresses him. I didn’t want to stress him. Then a few other things simply needed to be done.

After IL6 got home from school, we immediately left for McDonald’s and his appointment, which went well. By the time I got home, I was too exhausted to read.

Thursday

Thursday I rushed directly from work to take dad to 2 back-to-back appointments. When I got home, I was feeling a bit burned out, so I took a nap. Then dad’s at-home nurse practitioner came to visit. M13 played Minecraft with IL6, then helped IL6 clean his room. I read. D15 was at crew for the high school play. In the evening, Aaron took IL6 to Cub Scouts, and I played D&D.

Friday

Friday was spent getting the physical form signed for M13 to join soccer. He decided in the evening, 3 business days from the first day of soccer that he wanted to join. I spent 2 hours on Thursday filling out the form, and an hour on Friday morning getting the form to the doctor. A couple hours later, they called to say the form didn’t print right, so I had to figure out what went wrong, and spend another hour dropping that off. Then, the doctor kindly signed it right away, so I spent another hour fetching the form. But M13 should be set to play soccer on Monday.

M13 and IL6 played Mario Kart and Aaron played Minecraft with IL6. D15 went to stay at her mom’s for the weekend. I got a little reading done – finishing my one book this week at the last minute.

Week’s Photos

Reading to myself

  • Shadow of the Gods, by John Gwynne
  • A Survey of Hinduism, by Klaus K Klostermaier
  • The Week: Occupy Chicago
  • The Economist: What Brazil Can Teach America
  • Mr Ballen Podcast
  • Ten Things Every Child with Autism Wishes You Knew, by Ellen Notbohm

Reading to IL5

  • Inspector Flytrap, by Tom Angleberger
  • Inspector Flytrap in the President’s Mane is Missing, by Tom Angleberger
  • My Big Fat Zombie Goldfish, by Mo O’Hara
  • Inspector Flytrap in the Goat Who Chewed Too Much, by Tom Angleberger
  • The Skull, by Jon Klassen

D14 reading

  • Six of Crows, by Leigh Bardugo

Media Completed

Otilla runs away and finds a big house with a skull. They become friends. The pictures of this book are wonderful and although the narrative is simple, it’s very cute.

In this book, Notbohm expands on what she claims was a highly successful essay about autistic kids. It had some good info for someone who knows almost nothing about autism, but informed me of nothing new. I hated the self-congratulatory tone of the book, where she avoided pointing out her mistakes and praised herself on how her son “Bryce” turned out, considering his original limitations. Not once does she acknowledge the work “Bryce” went through to succeed. Also, way at the end of the book, she mentions having two boys with autism, despite only talking about “Bryce” the whole book. Either she is more proud of her accomplishments with “Bryce,” or she merged her two kids into one fake child with all their limitations combined at the beginning and all of their successes combined at the end. Note I say their successes. Because they worked a lot harder than Notbohm did, regardless of what she may think.

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